Intern, Patient Advocacy

Pursuing a Master’s degree in a relevant field of study (e.g., public policy, health policy, health related field (genetic counseling, nursing etc.), with minimum of one year completed, enrolled as a full-time student with plans to return to school in fall term

Passionate about helping others and making a difference in the lives of patients

Familiarity with or interest in the areas of patient-focused drug development, patient engagement, patient programs and/or patient advocacy in the non-profit or pharmaceutical industry preferred

Familiarity with use and role of social media platforms such as Facebook in the fields of patient advocacy and patient education

Long term incentive and Employee stock purchase plans or equivalent offerings

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws.

Patients are at the center of Ultragenyx’s mission to bring to market novel products for the treatment of rare and ultra-rare diseases.

The Ultragenyx Patient Advocacy team works to make a difference by supporting patients, caregivers and patient groups and develop productive partnerships and facilitate dialogue with patient partners and patient advocacy organizations to further mutual interests.

Engagement with patients and patient advocacy groups is a critical success factor for the discovery, development and approval of investigational therapeutic programs in rare and genetically defined diseases.

Direct patient interaction is required throughout discovery and development to inform trial design and recruitment, and to develop the appropriate partnerships necessary to support the commercialization phase and effectively serve the patient community.

Internally, the team is responsible for infusing the patient voice into the everyday operations of the company, informing corporate strategies and key decisions, and nurturing Ultragenyx’s resolute sense of urgency and patient-centric culture.

The Patient Advocacy team partners closely with the clinical development, discovery, commercial, regulatory, and public affairs functions to inculcate patient insights into Ultragenyx's programs, decision-making and communications.